Healthcare professionals from the South Eastern Trust, patients and politicians gathered at Stormont to highlight the need for support for patients living with Facial Palsy, which is a life-changing condition.
The event provided an opportunity for patients to meet face to face for the first time, share their experiences and support one another.
Facial Palsy is a weakness of the facial muscles, primarily due to temporary or permanent damage to the facial nerve. When the facial nerve is non-functioning or missing, the affected muscles do not receive the necessary signals to function properly, resulting in paralysis. This can impact eye and mouth movement and other facial functions. With over 60 known causes of Facial Palsy, misdiagnosis is common, making access to appropriate healthcare challenging. Long-term complications include difficulty smiling, speaking, eating, blinking and sleeping, as well as muscle tightness and pain The psychological impact of living with Facial Palsy is profound, affecting mental health, self identity and emotional wellbeing.
Patient Advocate, Janet Robb emphasised the importance of the event, stating, “This is the first opportunity for patients in Northern Ireland to meet in person, which is invaluable in helping them connect with others who truly understand the impact of losing their facial identity. No matter how many times loved ones reassure us that we ‘look fine,’ we know we feel different. Our brains seek symmetry and when we don’t see that in the mirror, it triggers distress. This event allows patients to share their experiences and offer mutual support.”
South Eastern Trust Consultant Plastic Surgeon, Mr Alastair Brown, highlighted the significance of raising awareness, saying, “Facial Palsy is not just about appearance, it impacts function, psychological health and social interactions. The effects can be life changing. Early intervention can prevent worsening symptoms. Beyond surgery, therapy and psychological support are essential, as many patients require lifelong treatment.”
Consultant Psychologist, Dr Jenny Maguire, stressed the need for a specialist Regional Multi-Disciplinary Team, stating, “Psychological support is crucial, as nearly half of Facial Palsy patients experience depression, with some also suffering from PTSD. This condition affects not just physical appearance but self identity, relationships and daily life.”
Advanced Physiotherapy Practitioner in the South Eastern Trust Plastics and Maxillo Facial Team, Alison Hewitt, explained the complexities of Facial Palsy treatment, “Facial Palsy can lead to issues such as pain, muscle tightness and facial asymmetry. Basic functions like blinking, smiling, and speaking can become difficult, impacting work and social life. The facial muscles are incredibly complex and incorrect therapy can worsen the condition. That is why it is essential to have specialist services to ensure the best recovery outcomes.”
Nick Mathison, MLA who sponsored the event, expressed his commitment to supporting Facial Palsy patients, adding, “We are pleased to provide a platform at Stormont for both patients and clinicians. Healthcare professionals are eager to be part of the solution, but investment is needed to integrate services and provide timely, appropriate care for Facial Palsy patients. This is a life-changing condition and there is a moral duty to ensure patients receive the support they need.”
The event also featured a powerful photographic exhibition by Helena Anderson, documenting her recovery journey after being diagnosed with severe Facial Palsy due to Ramsay Hunt Syndrome in 2016. Helena has now recovered well and is showcasing her recovery journey in a bid to raise awareness of Facial Palsy and provide hope to others facing similar challenges.
